Awareness needed to avoid sickle cell anaemia: Nepal Health Research Council

Today is World Sickle Cell Day – Precinct Reporter Group News

According to him, "On this day, we stand with sufferers of the disease and urge them to keep on the good fight against whatever limitations the disease may have foisted on them".

Sickle cell disease affects millions of adults and children around the world.

Chairperson, Coalition of Sickle Cell Disorder NGOs, Lagos State/Executive Director, Sickle Cell Advocacy and Management Initiatives, SAMI, Ms Toyin Adesola, said: "The annual walk brings together people from all walks of life to advocate the recognition of the disorder as a major public health problem in Nigeria, where 1-in-4 people are healthy carriers of the sickle cell gene and over 150,000 children are born annually with symptomatic sickle cell anemia". "Much as it is a matter of the heart, intending couples should be properly guided". "While sickle cell trait is mild, sickle cell disease is serious", she said. It is present on four continents: in sub-Saharan Africa and in the Maghreb, in Asia (Middle-East, Arabic peninsula, India), in the Americas, on the North (USA), centre (Guatemala, Caribbean islands), and on the South (Brazil, Surinam, Guiana), in Southern Europe (Southern Italy and Sicily, Greece, Turkey). Up to 80 per cent of those born will die before their fifth birthday without proper medical care.

Sickle cell disease has been a well-established risk factor for stroke.

"Their babies should be screened to ensure early diagnosis in order to tackle and avert the challenges of infant sickle cell patients".

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What are the key outcomes of the five forces analysis of the global Sickle Cell Disease Drug market? As parents, it's our responsibility to request a sickle cell test when our babies have been born.

"This plan should entails early diagnosis with newborn screening, while the main target should be the mothers who are AS genotype carrier". In 2016, the Society founded the Sickle Cell Disease Coalition to amplify the voice of the SCD stakeholder community, promote awareness, and improve outcomes for individuals with SCD globally.

The ministry of Health, with a team of researchers from Makerere University, shared results from a Hydroxyurea study, where they highlighted that this drug is safe in Uganda. Still, there has been so little research on sickle cell disease that it is hard even to write evidence-based protocols.

Every child deserves a chance to have a productive life. Let us all avoid the stigma and discrimination.

"Indeed, this day is the end of an epoch because, with this NGO, we will sustainably deal with myths that surround sickle cell anaemia".

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